Golden Turmeric Latte

Activated Turmeric  for use in Golden Turmeric Latte


Ingredients:

1/2 cup filtered water (not tap)

1/4 cup organic turmeric powder

1/2 tsp ground black pepper

Add all ingredients to a small saucepan and heat on medium-high, stirring constantly until the mixture forms a thick paste (about 5 minutes). Carefully transfer to a resealable glass container and store in the fridge for up to two weeks.

To make a Golden Turmeric Latte

To a saucepan add a mug of coconut milk or cream, dairy milk or almond milk.

Add ½ teaspoon of activated turmeric paste (as above)

A small teaspoon of coconut oil / I like to add a cinnamon stick too.

1-2 teaspoons of coconut sugar

Heat gently until oil dissolves.  Pour into a mug and sprinkle with a little ground cinnamon and serve. 

I am ready to break up, we will just do a biopsy to make sure.

I had my fingers stuck in my ears, la la la laaaaa, no I don’t want to hear what you do in a biopsy to ascertain whether or not you got all the cancer in my throat and tonsils. You have prefaced this description by saying it is barbaric. Enough said.

May 2019 and I was 3 months post all my treatment. My bloods had held out for chemotherapy, I handled the “mask” ok during radiotherapy, in fact I use to fall asleep at times. I religiously slathered cream on my fried skin. By May 2nd all eating had stopped. I couldn’t manage anything. Nerve endings were raw, mucous wasn’t moving up or down, dewlap was tight and puffy and I was feeling really, really sick and flat. The pain at ground zero was excrutiating. I couldn’t swallow my own saliva. A dental visit discovered a pocket and what appeared to be exposed bone on my lower jaw. A PET scan was scheduled and I limped through on a cocktail of pain relief.

It turned out that the radiation was so intense it had torn away the flesh from my jaw bone. I was in the hurt locker – this was a time where I was meant to be improving.

Day 250 something of complete sh*t

To say it hurt was a massive understatement. The PET scan was clear and the CT scan revealed some inflammation. I had had, surgery, radiation and chemotherapy on a relatively very small space and inflammation was the least of my problems. During this time I was also undertaking cold laser treatment on my lymphodema. It was helping the healing of my scar tissue internally. Mid June and I was still in a very bad way, icecream hurt if that’s possible. I was using my PEG constantly for nutrition and nothing orally at all. No soup, smoothies or icecream. At this point, my medical team (oncologist) introduced Methadone. Slowly at first, increasing dosage to see how I would react. Well, it turns out, me and opioids who would have guessed. So I am now on methadone, amitriptyline, gabapentin, paracetamol and all through the PEG. Still I was in pain and I had to keep on top of it.

PEG replacement in Emergency at the RAH

In the middle of all of this I had to have a breast screen. I questioned whether or not with all the MRI’s and CT’s being undertaken was it necessary? Yes, it was and that came back clear. So I struggled through until July 2019, where the methadone basically made my life liveable. I slept really deeply, my coughing got a lot worst before it got better. I started to “eat” tiny amounts. Mainly cream and iceceam. My dentist didn’t want to give me Trental (a drug that increases blood flow to wound site) in case I had residual or more cancer. We did not know what we were dealing with so I had to wait until we had results back from yet another PET scan. Whilst I was waiting for my results my stomach PEG fell out of my stomach. It was early morning and I had felt faint and sick, not taking alot of notice because that was normal to feel that way. I was making the bed when I felt what was my cat’s tail between my legs. It wasn’t Rockets tail but the PEG and the end of the disintegrated balloon. So in I went via ambulance to Emergency to get my PEG put back in. You have a fifteen minute window until the track starts to heal over. We didn’t make it, so I was admitted over night and had the whole rig replaced again. There is a whole other story about this process involving syringes and feeds. To say it wasn’t straight forward is putting it mildly, suffice to say I was becoming an expert on PEGS.

I am a visual person so this helped me understand what was happening when I was trying to swallow. I marked where food and drink should go and where it shouldn’t.

Fast forward a couple of weeks and I received the results of the second PET scan – the journey at this point had been 10 very long months and I was going in for a biopsy to make 100% sure we were not dealing with anymore cancer. It was about this time I decided to take matters into my own hands and start seeing a Naturopath. Detail of which may be read here along with the results of the PET scan.

We are now in October of 2019. My healing is taking so long and I can’t swallow the Trental meds well and the side affects are making me feel sick. My oncologist visit resulted in me asking if I could be considered for Hyperbaric treatment. This treatment turned out to be the best thing for me. Six days a week for 6 weeks or 33 sessions in a hyperbaric chamber.

Hyperbaric essentially meant I was healing at a faster rate than under normal conditions. The oxygen levels are many times greater and it’s done in a diving chamber. I could feel the difference in a couple of days. It turned out to be my saviour. I finished Hypobaric mid November of 2019, in the end completing 29 sessions. I then had to have a colonoscopy as a test had showed some positive results. Yes doesn’t rain it pours. This day surgery just about tipped me over the edge. I was so sick of hospitals and not eating. Fasting and prepping for this was pretty easy. You can work that out yourself.

I rang the Royal Adelaide Hospital and asked for a swallow test. I wanted to know why I couldn’t swallow, was there something more going on. They booked me in and it is a straight forward process where you stand in front of an Xray whilst attempting to swallow different textures. Apart from the loss of 1/3rd of my tongue, there appeared to be no real swallow issues. The dark blobs below represent fluid and food and where they stick. Gravity was doing most of the work.

Still, I am not eating well and I am getting really sick of “eating” artificial food or more commonly known as “commercially prepared liquid enteral nutrition formulas”. I managed to eat a very small amount over Christmas and knew that something had to change, my second Christmas was slightly better than the one before, but I wanted this PEG gone permanently and was told 6 months at least. Another 6 months was really bad news. I had been in a relationship with this PEG for 12 months, it was time to break up.

What about exercise, CDF & Covid-19?

Exercise & Covid-19

Sunrise in the park for regular Steppers (Step into Life – Kensington Gardens)

Some actions are just automatic, getting up at the crack of dawn to put your running shoes on so you can join your equally weird friends in the pitch black at the local park, is one.

I have been doing this now on and off for 9 years with Step into Life Kensington Gardens. A pandemic changes everything, including outdoor exercise. The reason outdoor fitness is popular is because by its very nature it’s done in nature, where you get fresh air, watch the sun rise or set, as the case maybe, have greater exposure to vitamin D, burn more calories due to temperature regulation especially in the cooler months.

Spiderman pushups are no easier on the grass!

Local indoor fitness centres and gyms are closing, shutting doors due to Government restrictions, in Australia that happens today 24th March 2020.

Yoga studios are moving in the same direction and moving to on-line virtual classes where your downward dog is likely shared with your dog or cat in the comfort of your own home.

Outdoor exercise in a public park in Australia is still open to everyone, it’s fast becoming a different story in New York where it is quoted “Of people who are carrying on life as usual, he said, “It is insensitive, arrogant, self-destructive, disrespectful to other people, and it has to stop, and it has to stop now.” #stopthespread

Keeping a 1.5m distance between clients

Here in Australia we can still enjoy group exercise as long as we follow the guidelines set out by the state and federal governments. Outdoor exercise is still permitted with self distancing measures being adhered, that is 1.5m between people.

This might explain why on my regular walk / run the other day there were considerably more people out on the oval exercising – the penny dropped, the gyms are shut and the PT’s have taken their clients “outside”.

I have always exercised, it is part of my DNA and I am pretty sure my fellow SIL (Steppers or Step into Life) friends are the same. Our outdoor exercise group not only provides physical activity but also much needed social interaction, mental support and general friendship bonds that become increasingly more difficult to forge as we age.

Recently there have been cancer diagnosis, house sales, house purchases, sick children the normalities of life and as an outdoor group we share these things and help each other through. It is really important whilst we physically ‘isolate’ to maintain good mental health practice, and for me that includes putting those running shoes on at the crack of dawn and meeting my group in the park.

So here are the rules for outdoor exercise, bring your own mat, exatube, weights and box gloves. Maintain a 1.5m distance from others and keep your waterbottle and personal belongings in a separate bag. Wash your hands before and certainly after your workout. Carry hand sanitiser and don’t share workout equipment.

You can maintain your exercise regime, and you can attend fitness classes outdoors. As they say in the army, just practice CDF. I’ll let you google that one.

Help me Rhonda kick start the Honda!

Kickstart or “activate” your turmeric. Who knew?

Activated Turmeric is better than just slugging back Turmeric powder and hoping for the best & here is why.

If it is not activated it’s not activated, meaning it is not doing the intended job. I started taking turmeric about 12 months ago to help with inflammation after surgery and radiotherapy. Turmeric contains Curcumin, which is the strong anti -inflammatory ingredient we are after. The end goal is to get the Turmeric from your mouth to your small intestine where it can be absorbed and be its most beneficial. To activate you need to follow this equation: –

Turmeric + Black Pepper + Fat = Kickstart Rhonda, that is activated Turmeric

Black pepper contains Piperine a compound that increases the bioavailability of Curcumin. Piperine slows the absorption of Curcumin in the stomach allowing the fat time to carry the Turmeric to the small intestine and that’s as techy as I am going to get for you and all you really need to know.

So to make this as easy as possible make up a small jar of activated turmeric paste and keep it in the fridge to use in smoothies and Golden Milk drink (recipe below).

Here’s the recipe to kicks start your Turmeric journey and get it out of the yard.

Ingredients:

1/2 cup filtered water (not tap)

1/4 cup organic turmeric powder

1/2 tsp ground black pepper

Add all ingredients to a small saucepan and heat on medium-high, stirring constantly until the mixture forms a thick paste (about 5 minutes). Carefully transfer to a resealable glass container and store in the fridge for up to two weeks.

L🧡VE

Golden Milk is a gorgeous way to have turmeric.

Combined with your preferred milk turmeric boosts calcium absorption, while the added fat from the coconut oil aids in your bodies ability to absorb and reap the rewards of turmeric. This soothing drink is the perfect thing to incorporate into your night time routine or on a cooler autumn afternoon to help promote a restful night’s sleep and boost immunity.

🧡
Ingredients:

1/2 – 1 tsp turmeric paste

1 cup milk (almond, soy, coconut, or dairy) try my home made oat milk recipe you can find it on The Food Manifesto facebook site.

1 tsp coconut oil

Honey, maple syrup, or coconut sugar to taste

Cinnamon or nutmeg to taste

Combine turmeric paste, milk, and coconut oil in a small saucepan and heat on medium high, stirring constantly to prevent the mixture from coming to a boil. Once heated, transfer to a mug and add the honey and cinnamon if you like. Perfect for the pending cooler weather.

Baby it’s cold outside…

Step into Life / Kensington Gardens – for more information: Here

Mid winter and we start to notice that our waistlines have thickened the days are shorter and the morning’s are dark. We have spent the majority of winter in heated offices, cars, supermarkets and eaten heavier foods and possibly consumed more red wine than we would in the warmer months. Who in their right mind goes out to exercise in this weather?

Well as it happens quite a few people, and if you are like me and you start to wonder how can I fit it all in, then you need to set the alarm at 5.15am to make that 6am class on the oval or have your workout gear with you and make the 6pm class after work. For the past few years I have worked from home. Working from home appeals to me on a number of levels but the number one reason I have for being a fan of the “work from home” office is that it allows you to fit in your hour exercise for the day relatively easily.

I’ve always been an early riser and I love exercising in the morning. After work is too hard for me. By about 4.30pm I am done, my brain doesn’t fire and I do my best work very early in the morning. I am also hungry and ready for dinner at 6pm so that rules out after work workouts for me.

Here are some tips to help you make that early start.

1. Always have your exercise gear ready to go. I have a special drawer which contains only my workout clothes summer and winter. Beanies, gloves, cycling gear, rainproof jackets. Keep it washed and clean. Straight back to that drawer – no messing around trying to find an outfit at 5am.

2. Have the right clothing to suit the season and the activity. I have lots of layers, lightweight and quick drying. The secret to cold mornings is layers and what is this aversion Australians have for wearing hats ! Wearing a warm beanie in the morning solves most of the “cold” problems. Invest in one and some warm gloves whilst you are at it.

3. Correct shoes for exercising. Running shoes for running and all rounder shoes for everything else.

4. I also have a “gym bag” that has my shower proof jacket, a set of outdoor gloves and a beanie. My water bottle is always full ready to go in the fridge.

Exercising outdoors has its health benefits, exercise and sunlight together can get your blood flowing, providing organs with much needed nutrients to give us energy, stave off the blues and trim the waistline. Working out outside can also increase your metabolism. Watching the sunrise is pretty awesome too.

Research has shown that regular exercise strengthens your immune system so it can fight off bacterial and viral infections. This is important particularly in winter when you are exposed to cold and flu bugs. It’s also important to maintain an exercise programme to ensure constant care and boosting to your immune system. Sharing breakfast or a coffee post workout is always a nice thing to do too.

Some days my group outdoor exercise group is the only time I leave the house in winter. I have been training with Step into Life (SIL) at Kensington Gardens now for 8 years. SIL provide all the encouragement I need to get out there and actually do some focused training. I was very unfit when I started and I remember that every muscle in my body hurt and it was good to have trainers there to not only monitor me but also encourage you to try different activities. After 8 years I have made some amazing friends and the group fitness focus means you have and get encouragment from the group as well as the trainers. So if you live in my area, contact Annki here to come and have a try.

Do I have to eat ? When the dreaded stomach peg becomes the easier option, and you realise you are never eating pizza again.

Before I left Australia I had been suffering a constant sore throat, I put it down to stress and the fact that I was upheaving my life to go and do something else. I had assured myself that it would disappear and after five days on Phu Quoc island I realised I wasn’t getting better.

A heavy chest cold had settled in too and my ears hurt, I was swallowing razor blades and well, I felt like hell. My other blogs posts explain fully as to exactly where I was health wise

So fast forward 9 months and I am back home in Australia and trying to make myself eat and not rely on the stomach peg that was inserted back in December 2018. The life giving food peg and administer of all things water, medicine and food. Using the peg is relatively easy but you have to learn how to fill syringes, get them on to the end of the peg, keep them kinked, don’t push too fast or it all comes out every other orifice. Wash the syringes, have towels and wipes for mess and know that it will get all over your clothes if you are not careful.

The peg dangles (literally) from your stomach and gets in the way of everything. I tuck mine into my undies and apparently when they inserted mine they made it very short compared to others. My biggest issue was breaking the ‘seal’ that plugged the feed tube. I have had to go to Gastroenterology Department two times to get them to replace it. Apparently they had never seen this happen before, and suggested I was being too rough with it. Given I can’t turn the peg every day as I should, much like an ear ring … I doubt I am too rough on it. I threatened to go to Bunnings and get my own if they didn’t fix it. They fixed the problem by cutting the seal of a new peg and giving it to me. I am now month five with my peg. The last week or so it has become the only way I can take it anything either water, food or meds. I am also about to go into week 12 post treatment, 3 months since the chemotherapy, radiotherapy finished and 6 months since my surgery.

The past couple of weeks I have noted rapid changes in my skin texture, jaw numbness and the width to which I can (or cannot) open my mouth, also known as Trismus. The pain if I consume anything is excruciating. I have spent days in tears and I can honestly say I have never known pain like it. This is the after affects of radiotherapy. It’s not swallowing that hurts but the sensitivity my gums experience when anything other than ice cold milk is in contact with them. I am not eating anything now, I do try, but it ends with me doubled over in pain and in tears. It’s so debilitating and the small amount of social contact I had with the outside world is now nil. I can’t manage coffee or smoothies out side of my own home.

You should be able to get three fingers in between your teeth … I am a long way from home!

So I sit here on a rather dreary Sunday wondering whether this is ever going to get better, the solitude I am some times grateful for, but mostly I spend my time trying to heal, all my energy and focus is on me and getting better. It would appear that there is no end to this awful disease.

Hell of a way to lose those pesky last 5 kilos! Since we started the treatment I have lost 10 kilos.

With this being my third month post treatment I also get to have another PET scan ($$) and it’s my first to see whether they “got it” … there are no guarantees with the scanning, you could still have cancer and it’s not picked up. So I decided that they have got it all and that I am cancer free. What else can you do ? Next week too I am going to give cold laser a go to assist with the dewlap forming under my chin as a result of having 30 lymph nodes cut out. Accupuncture seems to alleviate some serious saliva issues through stimulating my saliva glands, and thrice daily face and neck stretches. Early days they keep telling me, early days.

May I have some more serviettes please? Week # 4 post treatment.

Today marks my mum’s 89th birthday and I am eternally grateful that she has been here for this most horrendous journey of mine with Head and Neck Cancer. This week marks week four post treatment. Although I have received conflicting information regarding what to expect, mostly it’s been accurate but to be fair, recuperation is different for everybody. The first two weeks after the radio and chemo therapy finished were appalling. They did not sugar coat it, and you just have to get through it best you can. Hold your breath and run straight towards it, keep going until you have to surface for air again.

I stayed with mum for those two weeks. Ideal because we both sat in very comfortable leather armchairs watching Edie McGuire followed by Channel Nine News. Leg rugs and soft food (or in my case no food) and lights out by 8pm. I suddenly realised how much closer to a nursing home I was getting. Still, it allowed me to spend time with mum and I was happy to sleep during the day and most of the night except for regular spitting into an old honey bucket every five minutes, I slept well with the help of some opioid.

For those to go through this it’s hard to explain how you are going to feel, I had this clawing tightness in my throat, gagging sensations that resulted in vomiting (a little not bucket loads) and the tricky part is to look after your teeth. Mouth sores and ulcers (I was lucky and did not suffer too badly) I kept up regular swilling of bicarb soda. I kept flossing and did what the specialist dentist told me to do religiously. My dentist Sharon gave me a scraper – best utensil ever.

Soft tooth brush, scraper and Christmas Tree flossing

Food wise I have dabbled with soup, smoothies ( which I couldn’t stand before this disease let alone now!) pulverised vegetables and pasta. Sounds appetising huh? then you eventually have no taste, or rather for me nothing tasted as it should. I had an iced coffee with ice-cream in it – I could tell it was cold but it could have been plaster for all I knew and could taste. I appeared to have lost the ability to taste ‘sweet’ and I don’t trust myself to cook because what I can taste and what it actually tastes like are two very different things. I have read that venturing out to public eating places can be challenging. No one these days makes good soup – well they do, but they are few and far between. I think I want something to eat, I can feel my appetite then ‘poof’ nothing. So mostly I dine at the home based buffet which is below.

Home based buffet where you can go back as many times as you like!

Week # 5 and now my saliva glands and taste buds are taking a hit. My surgery scar is healing nicely and my spit bucket has decreased in size. I also decided to go back to my exercise group for company and fresh air as much as any kind of disciplinary exercise. I have lost 8/9 kgs since I came back to Australia. In that sense I feel good but it’s a hell of a way to lose those pesky last 5 kilos. I hope to take up running and kick boxing again in the not too distant future, in the meantime I am taking it day by day. One day is good, the next it’s all I can do to get out of bed.

Step into Life Kensington Gardens – My fellow SIL comrades helped me through treatment and for that I am eternally grateful.

So we now head for week #6 with my eye on week #8 to see how much progress we have made. Something is new and different every day and I ventured out to have a fresh juice with a friend a week back and well, let’s just say that was not that successful. Although I discovered that I could swallow more than previously I had to have 3 big glasses to ensure I could add enough ice to my fruit juice to get it down ( the colder the better), watermelon plays havoc with your tongue and tastebuds, and I pretty much depleted their stash of serviettes for wiping, mopping up and generally making me look as though I had a two year old with me. Suffice to say that the G&T I tried at my local tasted like kerosene and is something I wont be trying again in a hurry. Ce La Vie.